Wednesday, August 22, 2007

Wonder



I stumbled across the lyrics to a Natalie Merchant song that just strikes a chord with me. I thought you might relate to it as well.



Wonder
By Natalie Merchant


Doctors have come
From distant cities
Just to see me
Stand over my bed
Disbelieving what they're seeing
They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation
Newspapers ask
Intimate questions
Want confessions
They reach into my head
To steal the glory
Of my story
They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation
I believe
Fate smiled and destiny
Laughed as she came to my cradle
"Know this child will be able"
Laughed as my body she lifted
"Know this child will be gifted
With love, with patience
And with faith
She'll make her way"
People see me
I'm a challenge
To your balance
I'm over your heads
How I confound you
And astound you
To know I must be one of the wonders
Of god's own creation
And as far as you can see you can offer me
No explanation
I believe
Fate smiled and destiny
Laughed as she came to my cradle
"Know this child will be able"
Laughed as she came to my mother
"Know this child will not suffer"
Laughed as my body she lifted
"Know this child will be gifted
With love, with patience
And with faith
She'll make her way"

Sunday, August 12, 2007

My Mystery Man


I was amused to hear that some members of the Northwest Illinois Autism Support Group didn't know if I was married or not, because they had never seen Donnie. I've finally included a photo album called "Family," which includes pictures of the three of us. There's also some pictures of my siblings, which will explain why my screen name is twin3rd. (My twin and I were the third set of twins in my immediate family).

Say cheese, Donnie!

2nd Request


8-2-07

2nd request

We need this back before school starts.

Thanks!



The above note was stuck to another request for me to sign a "Therapy Department Release Of/Request For Information," which again includes the phrase "and to obtain medical referrals for therapy, records, reports and verbal information..."

Yet again, and open release of any and all medical information the school wants.

I register him on Tuesday. I wonder how it will go over to receive a script for therapy and evaluation, and no signed release form...?

On an interesting note, I was searching the school's website for the correct address, and discovered that they listed a different principal. Hm. Time will tell if this is a good thing, or a bad thing. I have seen a principal make a huge impact on how Nathan is treated, and not in a good way. Could it be that we get a principal that perhaps dissapproves of restraint...? Of suspension for actions related to one's disability...? Or could we again be faced with a principal who thinks we should take our son home and "beat the living hell out of him"...?

Think positively, Joni. Think positively.

The Flood Waters Are Rising


It has been flooding here in Rockford. Our town has been declared a national disaster area.

My husband called me about 5:30-6:00 this morning, and informed me that the Army Corp of Engineers was at the Alpine dam. This was not good. There was a major flood here a year ago, and the dam was feared to be unable to withstand the additional pressure. Now it appears to be happening again.

By 6am, I had walked to the corner and peeked in the direction of the park, which I discovered was completely submerged. The flood waters were now just around the corner from my house.

I turned on the tv to hear what was happening in town. Sadly, I watched pictures of my closest Logli, it's parking lot under three feet of water. They announced Charles Street and Broadway were closed. Then they announced 11th Street, the street my company is on, was closed (but not that far south). How was I going to get to work? I figured I would have to take the long way around. Then I started hearing road closures at Sandy Hollow and South Alpine. At this point I'm thinking of Mulford as a possible route to work.

At 6:30 or so, I left a message at work, explaining that the roads were shutting down in my area, but I would still try to get there as best I could.

I called my mother-in-law, who was going to watch my son for the day. As I was talking to her, I overheard the tv announce that Chelsea and Guilford were closed due to a sink hole. That was on my way to her house. They also announced State and Alpine was closed! Holy cow, for that intersection to be closed, this had to be bad. I planned to be on the road by 7am, giving me an hour to make a normally 15 minute drive.

Getting to MIL's house was interesting. The traffic was being diverted away from Alpine, right down Rural, which I needed to take, only in the opposite direction. I had no one on my side of the street, and breezed along easily. However, the opposite lane was bumper to bumper pretty much from Fairview to Alpine.

MIL was getting water in the basement, but nothing major, just a little. They were higher than the nearby dam, so they were safe if that overflowed.

I headed for work, deciding to head straight east instead of south. I drove along the edge of Mauh-nah-tee0see golf course, unsure if the water was going to lap over the edge of the road in some places. The little foot bridge near the road looked like it was floating in the middle of a pond. I got to Mulford, heading south, and cruised along nicely. I saw traffic lights out at Newburg, but it all moved well. Then I saw a police car on the side of the road, and quickly scanned to see why. That's when I saw the railroad tracks. The earth had been washed away under the tracks, leaving the rails suspended over thin air. Yikes! I turned west, to swing back toward work. The road was submerged, but not by much. I saw a bunch of cars risk the soggy roadway successfully, so I chanced it. I had no intention of going that way on my return trip however.

As I drove the rest of the way to work, I heard that State and Fairview was now under water! It had been fine just a few minutes ago! Then they announced the closing of State Street, at Fairview, Alpine and Trainer Roads! That was not good at all. By the time I got to work, I was not at all sure I could get home again.

At work, I checked a website for a local tv station. It listed an evacuation of my neighborhood! I phoned a neighbor, who knew nothing about it, but she informed me the police were driving down our street, and parked at the end of it. Oh no!

That's when I thought about my dog.

I told my boss that my street was being evacuated, and she told me I might as well stay, because they'll never let me in. I insisted I had to go home, to try to rescue my puppy, trapped in his kennel. She let me go. The general manager stopped me on my way out the door, and told me to call if I needed any help. What a nice guy!

I managed to weave my way home, avoiding all the closed roads. I immediately started packing up computers, and gathering any personal items I wanted to rescue. My husband joined me, and dismantled the kennel so we could take the dog to my MIL's.

The police did come (loudly!) banging on our door. They insisted we leave as soon as possible and get to higher ground. They were getting reports that Alpine Dam was going to burst, it was just a matter of time. All that water would follow the path of Keith Creek, putting our house right in the danger zone. So much for the "voluntary" evacuation we heard about on the radio. The police were rather insistant. "Leave now!"

It was wild driving away from the house. The streets looked like a mass evacuation. Everyone was slowly making their way to higher ground. Very eerie!

Police were everywhere, directing traffic, and trying to get as many people out of the path of the dam as they could. My husband and I braced ourselves for the idea that our house could be slammed with a title wave of water.

We were both driving, Dh following me, until we spotted a street that we often used as a shortcut. No one appeared to be using it! We both cut out of the traffic and zipped up the street. We got to MIL's house in record time, avoiding all the horrible traffic.

At MIL's, we heard the news. The dam was near breaking point. They said the water was near the spill-over stage. At that point, the dam would become unstable, and they expected it to rupture. But they decided to do a slow release of the water instead. This lowered the water level in the dam by 1-1/2 feet in a half hour. That aleviated the stress on the unstable dam, and averted the crisis.

Quickly, the roads began to open up again. I headed back to work. All our belongings were kept at the ready, in case we need to grab them again.

More rain is expected tonight.

Thursday, August 2, 2007

Familiar Face

It was so cool to go to the Family Night at camp, and see a familiar face! Another member of the Northwest Illinois Autism Support Group was there too!

She asked me if I was happy with the camp. I told her about Nathan getting hit, kicked, punched, right in front of counselors, and about his finally getting fed up and walking out. I also told her exactly where he was when they finally found him (nearly to the major highway). She was just as appalled as I was. She asked if he had an aide, and I told her yes.

She confessed that her son had also had problems at camp, with a bunch of kids giving the finger (also in the presence of the counselors), and being all around unfriendly. He was not happy with the camp at all. After four days, she's pulling him out of the camp.

She told me about a daycare that she uses, which is also affiliated with the same group, but they do a much better job with the kids. I've tried to get into it, but they are full.

I've wanted to complain to the people who run the camp, but Dh won't let me. He doesn't want me to ruffle feathers, because we don't have that many options in this town for daycare. I don't want to keep using this place! But what choice do I have? I can't just leave him with some untrained teenager. I don't have family in the area that I can use on a regular basis for childcare. And we've gone through just about every daycare in town.

Many members of NIASG are hoping that the new autism school will have a decent daycare/afterschool care program associated with it. I know the groups they are planning on using for their childcare are the Y and the same group that runs the camp. I'm not happy about either one. If they can't handle my son, how are they going to work with kids that are more profoundly affected???

I guess there just aren't that many moms who have to work. Or maybe they have family they can leave their kids with.